The Tuberous Sclerosis Alliance announced today that it has designated the Swedish Pediatric Neuroscience Center (SPNC) at SNI as a TSC Clinic. Marcio Sotero, MD, medical director of SPNC, is the director of the new center. This designation is an important step forward in the regional delivery of care to patients with tuberous sclerosis, as the TSC Clinics closest to Seattle are located at the Barrow Neurological Institute in Phoenix and Children’s Hospital in Oakland, CA.
TSC is a genetic disorder that causes tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin and lungs. Seizures are a very common manifestation, and some people with TSC experience developmental delay, mental retardation and autism.